Payton behind the wheel
Payton Thornton drives brother Paxton around the yard in a four wheeler using a modified steering wheel his father constructed.
- National Attention
Payton’s story was also covered in a documentary on TLC. Filmed in 2010, “My Skin is Killing Me” told the story of several people with unusual skin diseases, including Payton as he underwent an experimental bone marrow/skin cell transplant. Payton’s mother, Joy, always knows when the documentary airs in reruns because she’ll get asked, “How is Payton?” To which she invariably answers, “He’s doing good … all boy.”
Posted: Sunday, August 17, 2014 12:20 am
A race car for a child with a rare skin disease doesn’t sound like such a wise idea. But that’s just the kind of little boy Payton Thornton is: tough.
Sure, the slightest bump could lead to blisters and scarring, but the threat of pain has never slowed down this White Plains boy. Payton, now 9 years old, was born with recessive dystrophic epidermolysis bullosa — “EB” for short. Children born with EB lack a protein that anchors the layers of skin together, leaving them prone to blisters, scabs and scars.
Contact Brett Buckner at firstname.lastname@example.org.
Life & Arts,
Sunday, August 17, 2014 12:20 am.